It's Not Yet Dark Author:Simon Fitzmaurice 'I am a stranger, a different breed...I do not eat or drink or walk or talk the way you do. I don't breathe without a machine helping me day and night. I cannot move my arms or legs. And yet. I'm still a man. — I've lost so much. And yet. I'm still here. I feel everything. The slightest feather touch anywhere on my body. And my heart is alive. To... more » meaning. To Value. To love. Which is all it's ever been about...'
In 2008, Simon Fitzmaurice was diagnosed with Motor Neurone Disease. He was given four years to live.
In 2010, in a state of lung-function collapse, Simon knew with crystal clarity that now was not his time to die. Against all prevailing medical opinion, he chose to ventilate in order to stay alive.
Here, the young filmmaker, a husband and father of five small children draws us deeply into his inner world. Told in simply expressed and beautifully stark prose - in the vein of such memoirs as Jean-Dominique Bauby's The Diving Bell and The Butterfly - the result is an astonishing journey into a life which, though brutally compromised, is lived more fully and in the moment than most, revealing at its core the power of love its most potent.
Written using an eye-gaze computer, It's Not Yet Dark is an unforgettable book about relationships and family, about what connects and separates us as people and, ultimately, about what it means to be alive.
'Crystal clear, radiating all the things that we aspire toward. A beautiful love story.' Colin Farrell
'Beautifully written...utterly life-affirming.' Alan Rickman« less