This book was a good read. Sad at times, but made me realize just how devestating this disease can be. I read it in 1 day.
This little girl's story will touch your heart.
This is an excellent book following the life of Alexandra Deford, a child with Cystic Fibrosis. I enjoyed it (although it is not a light read), and learned a great deal about the experience of this disease, for both patient and family.
I have read this book several times. This book was written by Alex's father, Frank Deford. Alex's story is one of courage and sadness...it is about one little girl's battle with Cystic Fibrosis, the number one genetic killer of children. (from front)Grab the tissues-it stays with you for a long time.
A beautiful story of a brave little girl...a must read.
I thought this book was really interesting although I do believe that there was alot of bias in the way the father viewed Alex. And, who wouldn't be biased, I suppose? But, he made her out to be an angel and no person ever is. I did enjoy the book and learned alot about Cystic Fibrosis. He done a very good job of writing this book and making it interesting.
sad story. very well written....as a mother with a child that lives with CF it is a reminder of how far we have come with treatments and possibilities.
I enjoyed the book. It gave a personal insight into the family life of someone with a terminally ill child. My college advisor said it was a must read for those helping children with disabilities.
This book truly touched my heart.
Alexandra Deford, a precious and precocious girl, was just eight years old when she died in 1980 following a battle against the debilitating effects of cystic fibrosis, the number-one genetic killer of children. Her poignant and uplifting story touched the hearts of millions when it was first published and then made into a memorable television movie. A new introduction contains information on the latest cystic fibrosis research, and a touching postcript reveals how the Deford family came to terms with the loss of Alex.
Whenever he speaks, sportswriter Frank Deford knows people will bring articles for him to sign. But what makes him happiest is when someone attends a sports-oriented lecture and brings a copy of Alex: The Life of a Child for him to sign. "Invariably, and happily, there's usually someone at each appearance who either brings that book or wants to talk about their connection to cystic fibrosis." Deford says. "It's tremendously gratifying to me. Rarely does a week go by that I don't get a letter about that book. People leave things at her grave. They really do. I have people tell me that she changed their lives. It's terribly dramatic, but they literally say that. I heard from a woman who became a pediatric nurse after reading the book. Hearing from people like that means more to me than anything."
Alexandra Deford, a precious and precocious girl, was just eight years old when she died in 1980 following a battle against the debilitating effects of cystic fibrosis, the number-one genetic killer of children. Her poignant and uplifting story touched the hearts of millions when it was first published and then made into a memorable television movie. A new introduction contains information on the latest cystic fibrosis research, and a touching postcript reveals how the Deford family came to terms with the loss of Alex.
Whenever he speaks, sportswriter Frank Deford knows people will bring articles for him to sign. But what makes him happiest is when someone attends a sports-oriented lecture and brings a copy of Alex: The Life of a Child for him to sign. "Invariably, and happily, there's usually someone at each appearance who either brings that book or wants to talk about their connection to cystic fibrosis." Deford says. "It's tremendously gratifying to me. Rarely does a week go by that I don't get a letter about that book. People leave things at her grave. They really do. I have people tell me that she changed their lives. It's terribly dramatic, but they literally say that. I heard from a woman who became a pediatric nurse after reading the book. Hearing from people like that means more to me than anything."
The unforgetable story of a courageous little girls battle for life against Cystic Fibrosis.
Written in 1982 - and today it is just as relevant. Well worth reading.
